On Monday, we received bad news. After two clear scans, when we were told to expect progression and were clear, in April, my husband has 6 new tumors. In less than four months, Alyn has 2cm metastasises (mets) in his hip, rib and two in his lung. There are two other small mets - one is in his right shoulder blade, but the other is in his brain. I keep telling myself the brain met is small - 4mm. The problem is that the drug they want him to take to prevent future growth is not eligible for patients with brain mets.
Solution: Lose dose whole head radiation for the brain met to make him eligible for the brand new FDA approved med. Radiation to the hip, rib and shoulder blade to eliminate mets to reduce pain.
OK, lets talk about the emotions involved. First of all, I want everyone to know that I think this whole situation SUCKS! If I could use harsher language and still publish with out a "R" rating, I would. I am very angry. This just isn't fair.
On Wednesday, May 2nd, I will be 47 years old. November 1, 1998, I met my best friend. He was introduced to me by one of my closest friends. She would become my mother-in-law. She chose me to be her daughter by marriage which was the most amazing thing anyone had ever done for me. Before Suzanne died in the end of May, 2011, I was lucky enough to thank her for giving me my beautiful family.
Now, I am unable to say how long I will have my husband. The oncologist when Alyn asked what is the prognosis, said that his type of cancer is so rare that he cannot even give statistics. The Oncologist told us, we can expect it to go down from here and that he, the oncologist, is sorry. That was devastating. What do we do from here? Radiation.
We met with the ontological radiologist and started radiation on Thursday. for a 15 weekday, every business day treatment. Scared doesn't begin to explain how we feel. All we can do is ask for positive thoughts and prayers. Who knows... I so want to believe in miracles.
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